One of the positives of living with chronic illness at 20 is when I have a bad day my mom feels bad and makes me fancy alcoholic drinks. I feel spoiled.

I’m having trouble explaining to my friends now that I’m home for the summer that I’m too tired or don’t feel well and can’t hang out. I’m afraid if I keep telling them this they won’t want to hang out when the rare chance of me feeling okay comes around.

Well the trip to the natural doctor did not go so well. He suggested I go vegan and cut cigarettes, alcohol, and caffeine out of my diet (along with sugars and anything else that constitutes food). He also suggested that fibromyalgia wasn’t real and that I really had something wrong with my digestion. He then gave me a bunch of supplements and charged me 300 dollars for the whole visit.

The only good thing that came out of it was the muscle/massage specialist was this really cool Russian guy that made me laugh a lot. He made me lay on this bed with a bunch of spikey ends that dug into my back but it didn’t really hurt and could help. I just really enjoyed talking to the man (even though he couldn’t speak English very well).

All and all I think I’ll stick with the traditional route of treatment for now.

I would like to you know wear a bra so if you could stop making my skin so sensitive I would greatly appreciate it.

love,

Kaylee

I hate it when I tell someone I am broke and they say “well best buy is hiring” or this place is hiring. Do you honestly think that I want to be stuck in the house all day!?! I’m not being lazy, I’m sick.

Saw my Rheumy (for the last time since she’s leaving) and we are tripling the neurontin and doubling the anti-depressant to see if it helps. I’m a bit worried I’ll get crazy neurontin fogged but we’ll see. I also got the paper work for a handicapped thing so I have parking at college. Overall it was a productive visit!

So I agreed to horse sit for my friend so I’m working her horse twice this week along with the 2 other horses I told owners I would ride for them so I’ll be at the barn probably four days this week which will be damn near impossible for my body. That and hopefully I’ll be observing at a school for 3 days this week to for college. And I have a Rheumy appointment on Monday. There is A LOT going on and I’m not sure how I’ll handle it but I guess I’ll just try my best and the doctor will put me on a more helpful medication. Keeping my hopes up!

So you know how I said my mom said “at least you don’t have flesh eating bacteria!”……well I woke up this morning with a huge rash down my side. Thanks a lot mom.